{"id":158962,"date":"2024-09-07T20:42:36","date_gmt":"2024-09-07T18:42:36","guid":{"rendered":"https:\/\/likemetkovic.hr\/portal\/?p=158962"},"modified":"2024-09-07T20:42:36","modified_gmt":"2024-09-07T18:42:36","slug":"procelje-gks-a-osvijetljeno-crvenom-bojom","status":"publish","type":"post","link":"https:\/\/likemetkovic.hr\/portal\/procelje-gks-a-osvijetljeno-crvenom-bojom\/","title":{"rendered":"Pro\u010delje GKS-a osvijetljeno crvenom bojom"},"content":{"rendered":"

Pro\u010delje Gradskoga kulturnoga sredi\u0161ta Metkovi\u0107 ve\u010deras je osvijetljeno crvenom bojom. <\/strong>Metkovi\u0107 se tako tre\u0107u godinu zaredom pridru\u017eio gradovima koji obilje\u017eavaju Svjetski dan svjesnosti o Duchenne mi\u0161i\u0107noj distrofiji<\/strong>, objavio je metkovic.hr<\/a>.<\/p>\n

Mi\u0161i\u0107na distrofija je progresivna, nasljedna bolest koja djeluje na mi\u0161i\u0107e koji kontroliraju pokrete te oni propadaju i slabe. Mnogo je vrsta i oblika mi\u0161i\u0107ne distrofije, a me\u0111u najprogresivnijim je Duchenne mi\u0161i\u0107na distrofija (DMD). U svijetu vi\u0161e od 250.000 osoba \u017eivi s DMD.<\/p>\n

\"\"<\/p>\n

Ovogodi\u0161nja tema Svjetskog dana svjesnosti o DMD je \u201ePodigni svoj glas za Duchenne\u201c. Njome se nagla\u0161ava va\u017enost ja\u010danja glasa za zagovaranje prava, uklju\u010denosti i dobrobiti osoba s DMD i drugim distrofinopatijama s ciljem stvaranja dru\u0161tva koje pru\u017ea jednake mogu\u0107nosti za sve. Posebno zna\u010dajna za ovogodi\u0161nje obilje\u017eavanje Svjetskog dana svjesnosti o DMD je \u010dinjenica da se odr\u017eava pod pokroviteljstvom Europskog parlamenta po prvi put otkad su Ujedinjeni narodi (UN) dan 7. rujna slu\u017ebeno proglasili kao Svjetski dan svjesnosti o DMD, pri \u010demu je UN pozvao sve dr\u017eave \u010dlanice i druge me\u0111unarodne i regionalne organizacije, kao i civilno dru\u0161tvo, uklju\u010duju\u0107i nevladine organizacije i pojedince, da na odgovaraju\u0107i na\u010din, u suradnji s relevantnim dionicima i organizacijama, obilje\u017ee ovaj dan.<\/p>\n

Inicijativu osvjetljavanja poznatih znamenitosti, gra\u0111evina ili spomenika u Hrvatskoj povodom svjetskoga dana svjesnosti o Duchenne mi\u0161i\u0107noj distrofiji pokrenuo je Savez dru\u0161tava distrofi\u010dara Hrvatske (SDDH) koji se i ove godine tako pridru\u017eio svjetskoj kampanji World Duchenne Organization (Svjetska organizacija osoba s Duchenne mi\u0161i\u0107nom distrofijom).<\/p>\n","protected":false},"excerpt":{"rendered":"

Pro\u010delje Gradskoga kulturnoga sredi\u0161ta Metkovi\u0107 ve\u010deras je osvijetljeno crvenom bojom. Metkovi\u0107 se tako tre\u0107u godinu zaredom pridru\u017eio gradovima koji obilje\u017eavaju Svjetski dan svjesnosti o Duchenne mi\u0161i\u0107noj distrofiji, objavio je metkovic.hr. Mi\u0161i\u0107na distrofija je progresivna, nasljedna bolest koja djeluje na mi\u0161i\u0107e koji kontroliraju pokrete te oni propadaju i slabe. Mnogo je vrsta i oblika mi\u0161i\u0107ne distrofije, […]<\/p>\n","protected":false},"author":7,"featured_media":158963,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[296,11],"tags":[11064],"class_list":{"0":"post-158962","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-ab","8":"category-metkovic-dolina","9":"tag-misicna-distrofija"},"yoast_head":"\nPro\u010delje GKS-a osvijetljeno crvenom bojom - likemetkovic.hr<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/likemetkovic.hr\/portal\/procelje-gks-a-osvijetljeno-crvenom-bojom\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pro\u010delje GKS-a osvijetljeno crvenom bojom - likemetkovic.hr\" \/>\n<meta property=\"og:description\" content=\"Pro\u010delje Gradskoga kulturnoga sredi\u0161ta Metkovi\u0107 ve\u010deras je osvijetljeno crvenom bojom. Metkovi\u0107 se tako tre\u0107u godinu zaredom pridru\u017eio gradovima koji obilje\u017eavaju Svjetski dan svjesnosti o Duchenne mi\u0161i\u0107noj distrofiji, objavio je metkovic.hr. Mi\u0161i\u0107na distrofija je progresivna, nasljedna bolest koja djeluje na mi\u0161i\u0107e koji kontroliraju pokrete te oni propadaju i slabe. 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