{"id":55806,"date":"2018-03-21T09:48:41","date_gmt":"2018-03-21T08:48:41","guid":{"rendered":"http:\/\/likemetkovic.hr\/?p=55806"},"modified":"2018-03-21T09:48:41","modified_gmt":"2018-03-21T08:48:41","slug":"svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape","status":"publish","type":"post","link":"https:\/\/likemetkovic.hr\/portal\/svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape\/","title":{"rendered":"Svjetski dan osoba s Down-sindromom – ne zaboravite obu\u0107i \u0161arene \u010darape!"},"content":{"rendered":"

Down Syndrome International (DSI)<\/strong>\u00a0je slu\u017ebeno odredio 21. o\u017eujak kao\u00a0Svjetski dan osoba s Down sindromom (WDSD)<\/strong>. Navedeni datum je izabran kako bi ozna\u010dio jedinstvenost Downova sindroma u potrostru\u010denju (trisomiji) 21. kromosoma.<\/p>\n

Svjetski dan syndroma Down (WDSD) prvi put je obilje\u017een u Singapuru 2006. godine, a mnoge organizacije \u0161irom svijeta pridru\u017eit \u0107e se ovoj proslavi kroz razne doga\u0111aje i aktivnosti, tako da se dana\u0161nji datum obilje\u017eava u cijelom svijetu.<\/p>\n

Downov sindrom je genetski poreme\u0107aj koji je uzrokovan prisutno\u0161\u0107u jednog kromosoma vi\u0161ka. Nastaje u trenutku za\u010de\u0107a.<\/p>\n

Kromosomi<\/strong>\u00a0su si\u0107u\u0161ne nakupine bjelan\u010devina u svakoj stanici ljudskog organizma koje\u00a0prenose sve nasljedne karakteristike. Na svakom kromosomu nalaze se tisu\u0107e gena u kojima su zapisane sve na\u0161e nasljedne osobine u obliku DNK. Kromosomi dolaze u paru i u svakoj se stanici nalazi se 23 para (46 kromosoma ukupno). U svakom paru jedan kromosom potje\u010de od majke, a jedan od oca.<\/p>\n

Uzrok Downova sindroma otkrio je 1959. godine francuski geneti\u010dar\u00a0Jerome Lejeune<\/strong>. Na 21. paru kromosoma otkrio je jo\u0161 jedan kromosom vi\u0161ka, umjesto 2, tu su se nalazila 3 kromosoma, a u cijeloj stanici umjesto 46, ukupno 47 kromosoma.<\/p>\n

Takav poreme\u0107aj nalazi se kod svakog \u010dovjeka s Downovim sindromom. Nije ga mogu\u0107e izmijeniti, niti lije\u010diti. \u2018<\/p>\n

Sindrom<\/strong>\u00a0je naziv za skup zajedni\u010dkih znakova i karakteristika, a ime\u00a0Down<\/strong>\u00a0potje\u010de od imena engleskog lije\u010dnika\u00a0Johna Langdona Downa<\/strong>\u00a0koji je 1866. prvi opisao sindrom, gotovo 100 godina prije nego \u0161to je prona\u0111en uzrok poreme\u0107aju. Ljudi s Downovim sindromom imaju odre\u0111eni stupanj poreme\u0107aja u razvoju (mentalni hendikep).<\/p>\n

Stupanj poreme\u0107aja varira od osobe do osobe i nemogu\u0107e je odmah poslije poro\u0111aja ustanoviti koji \u0107e stupanj poreme\u0107aja dijete imati.<\/p>\n

Za\u0161to obilje\u017eavamo Svjetski dan sindroma Down?<\/h4>\n

Obilje\u017eavanjem Svjetskog dana sindroma Down \u017eelimo upoznati svijet s ovim poreme\u0107ajem i pri tomu potaknuti ljude za ve\u0107e po\u0161tivanje prava ljudi s Downovim sindromom. Ve\u0107im razumijevanjem i pobolj\u0161anjem njihovog polo\u017eaja u dru\u0161tvu mo\u017eemo pobolj\u0161ati kvalitetu \u017eivota osoba s sindromom down.<\/p>\n

Prosje\u010dno se\u00a0jedno od 650 novoro\u0111ene djece ra\u0111a s Downovim sindromom<\/strong>. Taj poreme\u0107aj sprje\u010dava normalan tjelesni i mentalni razvoj djeteta. Down sindrom smatra se jednim od\u00a0naj\u010de\u0161\u0107ih genetskih odstupanja<\/strong>\u00a0pri kojem postoji vi\u0161ak jednog ili dijela jednog kromosoma \u0161to uzrokuje razli\u010dite probleme u psihofizi\u010dkom razvoju djeteta.<\/p>\n

Znanstveno je tako\u0111er dokazano da postoje preko pedeset karakteristi\u010dnih obilje\u017eja, Down-sindroma. Njihov intenzitet se razlikuje od osobe do osobe.<\/p>\n

Zdravstvene te\u0161ko\u0107e koje imaju osobe s Downovim sindromom vrlo su varijabilne.\u00a030-60 posto osoba ima sr\u010dane gre\u0161ke, 20 posto osoba ima endokrinolo\u0161ke probleme<\/strong>\u00a0(naj\u010de\u0161\u0107e poreme\u0107aji u radu \u0161titne \u017elijezde). Osim toga, djeca s Downovim sindromom mogu imati\u00a0neurolo\u0161ke, hematolo\u0161ke poreme\u0107aje, poreme\u0107aje lokomotornog sustava, gastroinstestinalnog sustava, bolesti oka, bolesti usne \u0161upljine<\/strong>.<\/p>\n

Bez obzira koliki je postotak oboljenja ili poreme\u0107aja prisutno, ova djeca i mladi trebaju posebnu pa\u017enju, tijekom odrastanja razli\u010dite medicinske i rehabilitacijske postupke te posebne metode u\u010denja. Ovaj poreme\u0107aj je vrlo kompleksan te zahtijeva veliku anga\u017eiranost cijele obitelji oboljelog djeteta.<\/p>\n

Karakteristike djece s Down sindromom<\/h4>\n

Topli, dobrodu\u0161ni, vedri, veseli; komuniciraju sa svojom okolinom; vjerno kopiraju pona\u0161anja svoje sredine, mogu biti kreativni, u fazi djetinjstva im je potrebna obitelj, a zatim je potrebno osamostaliti ih za samostalan \u017eivot. Cijeli \u017eivot im je potrebna tu\u0111a njega i pomo\u0107.<\/p>\n

Poka\u017ei podr\u0161ku!
\n<\/strong><\/h4>\n

Simbol Dana sindroma Down su\u00a0\u0161arene \u010darape jer ih osobe s Down sindromom ne mogu upariti<\/strong>. No\u0161enjem \u0161arenih \u010darapa pokazuje se podr\u0161ka borbi osoba s Down sindromom kako bi se \u0161to bolje integrirali u na\u0161e dru\u0161tvo.<\/p>\n

Za\u0161to danas nositi rasparene \u0161arene \u010darape?<\/h4>\n

Zato da se pri\u010da o problemima osoba s Down sindromom. <\/strong>Kada vas upitaju: za\u0161to nosi\u0161 \u0161arene (razli\u010dite) \u010darape? Progovorit \u0107ete o problemima osoba s Downom i pokazati podr\u0161ku.<\/p>\n

Pi\u0161e: Hrvoje Krpan\/www.znanostblog.com<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Down Syndrome International (DSI)\u00a0je slu\u017ebeno odredio 21. o\u017eujak kao\u00a0Svjetski dan osoba s Down sindromom (WDSD). Navedeni datum je izabran kako bi ozna\u010dio jedinstvenost Downova sindroma u potrostru\u010denju (trisomiji) 21. kromosoma. Svjetski dan syndroma Down (WDSD) prvi put je obilje\u017een u Singapuru 2006. godine, a mnoge organizacije \u0161irom svijeta pridru\u017eit \u0107e se ovoj proslavi kroz razne […]<\/p>\n","protected":false},"author":7,"featured_media":55807,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[296,71],"tags":[2782,513,2783],"class_list":{"0":"post-55806","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-ab","8":"category-svega-po-malo","9":"tag-down-sindrom","10":"tag-sarene-carape","11":"tag-svjetski-dan"},"yoast_head":"\nSvjetski dan osoba s Down-sindromom - ne zaboravite obu\u0107i \u0161arene \u010darape! - likemetkovic.hr<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/likemetkovic.hr\/svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape\/\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Svjetski dan osoba s Down-sindromom - ne zaboravite obu\u0107i \u0161arene \u010darape! - likemetkovic.hr\" \/>\n<meta property=\"og:description\" content=\"Down Syndrome International (DSI)\u00a0je slu\u017ebeno odredio 21. o\u017eujak kao\u00a0Svjetski dan osoba s Down sindromom (WDSD). Navedeni datum je izabran kako bi ozna\u010dio jedinstvenost Downova sindroma u potrostru\u010denju (trisomiji) 21. kromosoma. Svjetski dan syndroma Down (WDSD) prvi put je obilje\u017een u Singapuru 2006. godine, a mnoge organizacije \u0161irom svijeta pridru\u017eit \u0107e se ovoj proslavi kroz razne […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/likemetkovic.hr\/svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape\/\" \/>\n<meta property=\"og:site_name\" content=\"likemetkovic.hr\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/likemetkovic.hr\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-03-21T08:48:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/likemetkovic.hr\/wp-content\/uploads\/2018\/03\/\u0161arene-\u010darape-down.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"800\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"LIKEmetkovic.hr\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Napisao\/la\" \/>\n\t<meta name=\"twitter:data1\" content=\"LIKEmetkovic.hr\" \/>\n\t<meta name=\"twitter:label2\" content=\"Procijenjeno vrijeme \u010ditanja\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/likemetkovic.hr\/svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape\/\",\"url\":\"https:\/\/likemetkovic.hr\/svjetski-dan-osoba-s-down-sindromom-ne-zaboravite-obuci-sarene-carape\/\",\"name\":\"Svjetski dan osoba s Down-sindromom - ne zaboravite obu\u0107i \u0161arene \u010darape! 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